Sometimes when you parent a child with a disability, it’s like flying an airplane in the fog. There’s a lot of “angst” in not knowing exactly where you are heading or what your life will look like.

I remember the day my husband and I sat in the doctor’s office in Washington DC’s Children’s Hospital and received the news that the concerns we had over Mary’s lack of development were indeed due to brain damage.

“Lord, I can’t do this!”. I don’t know how many times I have stood in my kitchen (or bedroom, or wherever) and have uttered these words. Perhaps it was when Mary had a meltdown in public or I had to clean up a mess she had made or when someone said something hurtful or dismissive to her.