When you are parenting a child with special needs, there often is a sense of loss … a loss of dreams, expectations and your own independence. And with loss, comes grieving.

Sometimes when you parent a child with a disability, it’s like flying an airplane in the fog. There’s a lot of “angst” in not knowing exactly where you are heading or what your life will look like.

I remember the day my husband and I sat in the doctor’s office in Washington DC’s Children’s Hospital and received the news that the concerns we had over Mary’s lack of development were indeed due to brain damage.